Abigail - Neuroblastoma

[Annabeth]

AnnaBeth,

I noticed that it has been some time since you gave us an update on how Abigail is doing.

When you get the opportunity, please drop a few lines. Thanks!

Hi everyone,

It has been a while. I am thrilled to tell you that Abigail is doing well and currently No Evidence of Disease (NED) in neuroblastoma vernacular.

We gave her Protocel religiously for 5 months, right through chemo: rounds 2 through 5. We stopped at that time because we had to go through a stem-cell COLLECTION (not transplant, never have, hopefully never will) and the apherisis doctor wasn't comfortable with Protocel during that time.

When we stopped Protocel, we began a rigorous anti-cancer, nutritional supplement program to regenerate the nutrition her body so desperately needed.

All in all, I loved Protocel. We will never be able to "say" what helped her respond so well, but as one person said to me "who cares? As long as she had that response!" After 2 rounds of chemo her huge tumor had shrunk over 90% and all her many metastasis had cleared and her bone marrow too. (which is pretty fab for high-risk neuroblastoma).

Anyway, we also did a 5 week course of Protocel a couple months ago as a maintainance thing.

Abigail is calling me. Gotta go. Will try to stop back in here more frequently!

Hope on, Trust on.