Danny - son with Pontine glioma - need some advice

[johncal2004]

Hi Elonna,

Its Margaret here Danny's Mum. Thank you for detailed replies to date. I've found them very useful.

Danny started on Protocel 23 seven weeks ago (he has moved to Protocel 50 two weeks ago), as soon as Danny started on Protocel 23, almost immediately the lysing started and I started to notice small improvements in Danny's symptoms e.g. the tilt of his head has improved, his hearing has improved and his headaches have decreased. But in the last few days, I have noticed a weakness in Danny's left arm and hand and his balance is very bad. Is this a side effect of the Protocel 50 or could it be the brain tumor? I am confused as his other symptoms had improved so much.

Many thanks,
Margaret