https://elonnascorner.com/ Mon, 06 Apr 2026 07:22:38 +0000 MyBB https://elonnascorner.com/showthread.php?tid=1011 Mon, 29 Jan 2024 16:14:09 +0000 https://elonnascorner.com/showthread.php?tid=1011
We learned later that it was TAM (a transitory form of leukemia, that resolves itself without treatment/intervention). In a couple of weeks, his white blood cells went back to normal, and when 8 months old, he did not have blasts in his blood anymore. 

We also performed some genetic tests on him, and found out that he had a mutation in the gene GATA1, and also in half of the cells of his bone marrow that were studied he had 3 of the 21st chromosome. He is not DS [Down's syndrome] (he does not look like it, and he is developing normally, so we have no reason to believe it). However, in his blood he has the same mutations that usually cause AMKL (his form of acute leukemia) in kids with DS.

A couple of weeks ago (he is 1y10mo old now), we learned that he has indeed developed AMKL. He is anemic, his platelets are low, and he has blasts and other leukemic cells in his blood again. The doctor said this time it is acute and not transitory, and recommended chemo, saying it would only be a 6 month treatment (instead of the 2-year period common for other types of acute leukemia).

We have started him on Protocel 23 [is this the correct one, or would the 50 formula be preferable?] a little bit over a week ago. We are giving about 1/4 tsp every 4h30min or so. We have noticed that he is tired (taking 1 nap more than usual, although he was doing that before as well, so we are not sure this is his anemia or Protocel, or both). He has had some small amount of white mucous on his nose (without other cold/flu symptons); we don't see this every day though. Since he started, we have seen 1 loose stool (although not a diarrhea, but less consistent than usual), but no white matter so far. We also noticed that his urine is getting darker (brown/orange). He is also very irritated lately, although his appetite seems to be improving a little.

One of his more natural doctors, prescribed an iron oral supplement and a vitamin B12 injection to help with the anemia/deficiency. We have given him the injection, but we fear the iron supplement would interfere with Protocel/feed the cancer. In any case, we want to avoid transfusions (because of mRNA), but also help alleviate the anemia, while Protocel takes its time to work.

We were giving him the pau d'arco tea (for the anemia and leukemia) before Protocel arrived, but we were told that it might interfere with Protocel. So, we stopped it.

Also, his belly (liver + spleen) is more swollen than before, but we are not sure if this is due to lysing or leukemia itself.

Is there anyone else here who has had a similar situation (a young child with leukemia/other cancer)? I would love to hear your thoughts and experience on this.

Any advice and encouragement is welcome

Felipe.]]>
We learned later that it was TAM (a transitory form of leukemia, that resolves itself without treatment/intervention). In a couple of weeks, his white blood cells went back to normal, and when 8 months old, he did not have blasts in his blood anymore. 

We also performed some genetic tests on him, and found out that he had a mutation in the gene GATA1, and also in half of the cells of his bone marrow that were studied he had 3 of the 21st chromosome. He is not DS [Down's syndrome] (he does not look like it, and he is developing normally, so we have no reason to believe it). However, in his blood he has the same mutations that usually cause AMKL (his form of acute leukemia) in kids with DS.

A couple of weeks ago (he is 1y10mo old now), we learned that he has indeed developed AMKL. He is anemic, his platelets are low, and he has blasts and other leukemic cells in his blood again. The doctor said this time it is acute and not transitory, and recommended chemo, saying it would only be a 6 month treatment (instead of the 2-year period common for other types of acute leukemia).

We have started him on Protocel 23 [is this the correct one, or would the 50 formula be preferable?] a little bit over a week ago. We are giving about 1/4 tsp every 4h30min or so. We have noticed that he is tired (taking 1 nap more than usual, although he was doing that before as well, so we are not sure this is his anemia or Protocel, or both). He has had some small amount of white mucous on his nose (without other cold/flu symptons); we don't see this every day though. Since he started, we have seen 1 loose stool (although not a diarrhea, but less consistent than usual), but no white matter so far. We also noticed that his urine is getting darker (brown/orange). He is also very irritated lately, although his appetite seems to be improving a little.

One of his more natural doctors, prescribed an iron oral supplement and a vitamin B12 injection to help with the anemia/deficiency. We have given him the injection, but we fear the iron supplement would interfere with Protocel/feed the cancer. In any case, we want to avoid transfusions (because of mRNA), but also help alleviate the anemia, while Protocel takes its time to work.

We were giving him the pau d'arco tea (for the anemia and leukemia) before Protocel arrived, but we were told that it might interfere with Protocel. So, we stopped it.

Also, his belly (liver + spleen) is more swollen than before, but we are not sure if this is due to lysing or leukemia itself.

Is there anyone else here who has had a similar situation (a young child with leukemia/other cancer)? I would love to hear your thoughts and experience on this.

Any advice and encouragement is welcome

Felipe.]]> https://elonnascorner.com/showthread.php?tid=953 Tue, 31 Mar 2015 00:55:39 +0000 https://elonnascorner.com/showthread.php?tid=953 In February 2015, our daughter (then 5 months old) was diagnosed with infantile fibrosarcoma (i.e., soft tissue cancer, which in our case is in the right lower leg muscle). The tumor is inoperable. We are exploring alternative treatments for our baby and came across Protocel in Tanya Harter Pierce's book, Outsmart Your Cancer. Any advice on which formula (#50 vs. #23) and the recommended dose (our daughter is now 7 months old) would be much appreciated.
Thank you,
Ned]]> In February 2015, our daughter (then 5 months old) was diagnosed with infantile fibrosarcoma (i.e., soft tissue cancer, which in our case is in the right lower leg muscle). The tumor is inoperable. We are exploring alternative treatments for our baby and came across Protocel in Tanya Harter Pierce's book, Outsmart Your Cancer. Any advice on which formula (#50 vs. #23) and the recommended dose (our daughter is now 7 months old) would be much appreciated.
Thank you,
Ned]]> https://elonnascorner.com/showthread.php?tid=950 Tue, 10 Mar 2015 22:47:02 +0000 https://elonnascorner.com/showthread.php?tid=950
I ordered Protocel 50 with paw paw capsules and im hoping to start them today a Week before I start a week of high dose chemo and then I will start Protocel again once the chemo is finished. Can anyone else give me information or help me on this journey? I'm willing to try any alternative method that could help me? Thankyou]]>
I ordered Protocel 50 with paw paw capsules and im hoping to start them today a Week before I start a week of high dose chemo and then I will start Protocel again once the chemo is finished. Can anyone else give me information or help me on this journey? I'm willing to try any alternative method that could help me? Thankyou]]> https://elonnascorner.com/showthread.php?tid=881 Tue, 06 May 2014 01:31:07 +0000 https://elonnascorner.com/showthread.php?tid=881
If you're a new Protocel user, this can be a most challenging time dealing with cancer. I am available to help you make sure you're using it correctly and help out with dietary questions and compatibility issues.

If you've posted before on the Corner and want to give us an update, please do so. Your voice is an encouragement to others just starting.

As of now, I've been a Protocel user since August, 2009 for skin cancer and as a prophylactic for breast cancer 15 years ago. I may just be one for life! My husband and I have also chosen to do the Navarro test every 6 months to monitor levels of HCG hormone associated with cancer in the body.

So please, feel free to post! I'll be checking daily. May God bless your journey.]]>
If you're a new Protocel user, this can be a most challenging time dealing with cancer. I am available to help you make sure you're using it correctly and help out with dietary questions and compatibility issues.

If you've posted before on the Corner and want to give us an update, please do so. Your voice is an encouragement to others just starting.

As of now, I've been a Protocel user since August, 2009 for skin cancer and as a prophylactic for breast cancer 15 years ago. I may just be one for life! My husband and I have also chosen to do the Navarro test every 6 months to monitor levels of HCG hormone associated with cancer in the body.

So please, feel free to post! I'll be checking daily. May God bless your journey.]]> https://elonnascorner.com/showthread.php?tid=769 Mon, 11 Feb 2013 06:59:40 +0000 https://elonnascorner.com/showthread.php?tid=769
Best,
Brandon]]>
Best,
Brandon]]> https://elonnascorner.com/showthread.php?tid=736 Wed, 28 Nov 2012 17:48:39 +0000 https://elonnascorner.com/showthread.php?tid=736 So we have spent the last 5 years on a roller coaster ride of ups and downs. We have tried many different natural/alternative therapies.
Kurt has right side weakness to the point his right hand is almost useless and he wears a brace in his right ankle to help with his walking. Over the past year his right side weakness has gotten worse and his drooling has increased. So we have decided to start him on Protocel.
I am proud to say that he goes to school and is in the 1st grade learning how to read and write! Even though it is a struggle for him he is doing very well, all As and Bs! I have a formula 23 schedule worked out for him and he will have to have one dose while he is at school. I am pretty sure that the school will not give it to him without a prescription but am unsure of this. His older brother is in the same school and he should be able to give Kurt his dose.
We are praying that God will use this to heal Kurt!

Denise
]]> So we have spent the last 5 years on a roller coaster ride of ups and downs. We have tried many different natural/alternative therapies.
Kurt has right side weakness to the point his right hand is almost useless and he wears a brace in his right ankle to help with his walking. Over the past year his right side weakness has gotten worse and his drooling has increased. So we have decided to start him on Protocel.
I am proud to say that he goes to school and is in the 1st grade learning how to read and write! Even though it is a struggle for him he is doing very well, all As and Bs! I have a formula 23 schedule worked out for him and he will have to have one dose while he is at school. I am pretty sure that the school will not give it to him without a prescription but am unsure of this. His older brother is in the same school and he should be able to give Kurt his dose.
We are praying that God will use this to heal Kurt!

Denise
]]> https://elonnascorner.com/showthread.php?tid=714 Tue, 18 Sep 2012 07:47:26 +0000 https://elonnascorner.com/showthread.php?tid=714
It is found at: http://www.Protocel.com

Simple and Sweet! Check it out at your leisure.]]>
It is found at: http://www.Protocel.com

Simple and Sweet! Check it out at your leisure.]]> https://elonnascorner.com/showthread.php?tid=713 Tue, 18 Sep 2012 07:21:36 +0000 https://elonnascorner.com/showthread.php?tid=713
I got to thinking about the below post I put up last week and realized that I did not give you enough information. As I do not want anyone to be stressed out over my absence, please see the updated post below:

==============================

I must apologize for my recent silence on The Corner. Over the past several months, many events have happened to our family that have had to take priority. The following is a few of the reasons why I'm so behind on The Corner and have not been readily available to you all here:

1. In case any of you were worried about this, none of us are sick, most especially not me.

2. My husband, Rob, has been laid off from work since the middle of June. We found out about the middle of August that his place of employment was permanently closing, we had no more sub-pay (extra weekly payment from the company due to a union negotiated contract) and that our insurance was ending as of 8/31. Great news to get about 10 days from this date. We had a feeling this could happen, but were praying/hoping for the business to be reopened under a new owner. My husband has worked at this mill over 23 years, my father and grandfather both retired from this mill, Rob's father and uncles worked and retired from there (except Rob's father who passed away at work one afternoon). So, this mill has been well established and productive to remain open this many years. At the time of its closing, it was making a profit in the range of 4 million to 10 million every month. We were all shocked that it was closed in the first place. However, the most recent owner had 2 other steel mills, both of which were massively losing money. The mill Rob worked in could not make up for their loss. So, the owner threw the entire business into bankruptcy. The bankruptcy judge ordered that our local mill be sold by auction within 50 days. This deadline did not allow sufficient time for an industry to get a working prospective in place to purchase it. On auction day, 2 liquidators showed up and the top bidder was awarded the mill. This mill employed around 1,200 men.

Rob has, of course, been seeking employment since the middle of June. However, at the age of 55, it is extremely discouraging to be in this position as well as not as employable as he would have been at age 35. He is a journeyman industrial electrician which is often referred to as "motor inspector". Unfortunately, he skilled trade does not include residential; therefore, he cannot step into the construction industry. Those of you who live in the US are aware that our economy is in the tank, industry is closing right and left, finding a new job is extremely difficult at the pay comparable to the skill set.

We are extremely excited that he was called on Friday last week and asked to come in for an interview on Monday 9/24 at 10:00 a.m. for an interview. If you see this note prior to this time, please pray with us that he find favor with the interviewer(s), that the job be in his skill set and that he be offered the position at a reason pay rate with benefits similar to what he had prior. Thank you!!

3. Part of the reason I felt the need to return to work is because of Rob's lay off as well as the fact that a bit of extra money at this time, helps fill in the gaps. However, returning to work has provided issues of itself as I have not worked away from my home since December of 2005. While it is usually for 2 days a week, these days are quite taxing on my body and my pain level has been greatly increased because of going back to work. With each passing week, I do believe that the job is helping my legs to get into a stronger position much more like my physical abilities prior to fracturing my leg and crushing my knee several years ago. At times it feels like I'm walking over 2 miles a day at work. Doing the amount of physical activity that is required for the job is taking me some time to adjust and for 1 to 2 days of the week, I'm icing down body parts and staying off them as much as possible as well as just not feeling up to doing much of anything. I'm sure this will change and leave with time -- it is just taking time.

4. Most of you know that I do a lot of my writing late at night. This is in large part because the house is quiet and I can really think about what I am writing and to help insure that I am giving out adequate suggestions. With my husband home right now, I find that I have no time to myself as someone (either Rob or our 2 girls that still live at home) are home. With the need to get adequate sleep because of working once more, I also do not have the luxury of working through the night and sleeping late into the morning any day of my choosing as I had before. So, I'm still having difficulty finding quiet time just for me as well as quiet time in order to work on The Corner.

5. Now with the changing of the seasons, my pain levels are increased with the up and down of the weather from damp/cold to warm/muggy, etc. As the winter season sets in more, this will change and get better as well.

6. Finally, one of our daughters is getting married in early December. Off and on through the earlier part of the year, we have been working on her wedding. We are now in the final crunch, so I'm a bit distracted by this.


While I realize I've promised this before, I will do my best to get everything caught up on The Corner at my earliest possible convenience.

As always, if there is an urgent matter, please give me a call. It is usually much easier to talk through an urgent matter on the phone. Take into consideration my work schedule is Mondays/Tuesdays. So, evenings those days after 7:00 pm would be best and not after 10:00 pm. The other days is catch as catch can.


==================================
Of Note: I've not taken the time to proof read this post. I hope there is not too many typos or misplaced wording./elonna]]>
I got to thinking about the below post I put up last week and realized that I did not give you enough information. As I do not want anyone to be stressed out over my absence, please see the updated post below:

==============================

I must apologize for my recent silence on The Corner. Over the past several months, many events have happened to our family that have had to take priority. The following is a few of the reasons why I'm so behind on The Corner and have not been readily available to you all here:

1. In case any of you were worried about this, none of us are sick, most especially not me.

2. My husband, Rob, has been laid off from work since the middle of June. We found out about the middle of August that his place of employment was permanently closing, we had no more sub-pay (extra weekly payment from the company due to a union negotiated contract) and that our insurance was ending as of 8/31. Great news to get about 10 days from this date. We had a feeling this could happen, but were praying/hoping for the business to be reopened under a new owner. My husband has worked at this mill over 23 years, my father and grandfather both retired from this mill, Rob's father and uncles worked and retired from there (except Rob's father who passed away at work one afternoon). So, this mill has been well established and productive to remain open this many years. At the time of its closing, it was making a profit in the range of 4 million to 10 million every month. We were all shocked that it was closed in the first place. However, the most recent owner had 2 other steel mills, both of which were massively losing money. The mill Rob worked in could not make up for their loss. So, the owner threw the entire business into bankruptcy. The bankruptcy judge ordered that our local mill be sold by auction within 50 days. This deadline did not allow sufficient time for an industry to get a working prospective in place to purchase it. On auction day, 2 liquidators showed up and the top bidder was awarded the mill. This mill employed around 1,200 men.

Rob has, of course, been seeking employment since the middle of June. However, at the age of 55, it is extremely discouraging to be in this position as well as not as employable as he would have been at age 35. He is a journeyman industrial electrician which is often referred to as "motor inspector". Unfortunately, he skilled trade does not include residential; therefore, he cannot step into the construction industry. Those of you who live in the US are aware that our economy is in the tank, industry is closing right and left, finding a new job is extremely difficult at the pay comparable to the skill set.

We are extremely excited that he was called on Friday last week and asked to come in for an interview on Monday 9/24 at 10:00 a.m. for an interview. If you see this note prior to this time, please pray with us that he find favor with the interviewer(s), that the job be in his skill set and that he be offered the position at a reason pay rate with benefits similar to what he had prior. Thank you!!

3. Part of the reason I felt the need to return to work is because of Rob's lay off as well as the fact that a bit of extra money at this time, helps fill in the gaps. However, returning to work has provided issues of itself as I have not worked away from my home since December of 2005. While it is usually for 2 days a week, these days are quite taxing on my body and my pain level has been greatly increased because of going back to work. With each passing week, I do believe that the job is helping my legs to get into a stronger position much more like my physical abilities prior to fracturing my leg and crushing my knee several years ago. At times it feels like I'm walking over 2 miles a day at work. Doing the amount of physical activity that is required for the job is taking me some time to adjust and for 1 to 2 days of the week, I'm icing down body parts and staying off them as much as possible as well as just not feeling up to doing much of anything. I'm sure this will change and leave with time -- it is just taking time.

4. Most of you know that I do a lot of my writing late at night. This is in large part because the house is quiet and I can really think about what I am writing and to help insure that I am giving out adequate suggestions. With my husband home right now, I find that I have no time to myself as someone (either Rob or our 2 girls that still live at home) are home. With the need to get adequate sleep because of working once more, I also do not have the luxury of working through the night and sleeping late into the morning any day of my choosing as I had before. So, I'm still having difficulty finding quiet time just for me as well as quiet time in order to work on The Corner.

5. Now with the changing of the seasons, my pain levels are increased with the up and down of the weather from damp/cold to warm/muggy, etc. As the winter season sets in more, this will change and get better as well.

6. Finally, one of our daughters is getting married in early December. Off and on through the earlier part of the year, we have been working on her wedding. We are now in the final crunch, so I'm a bit distracted by this.


While I realize I've promised this before, I will do my best to get everything caught up on The Corner at my earliest possible convenience.

As always, if there is an urgent matter, please give me a call. It is usually much easier to talk through an urgent matter on the phone. Take into consideration my work schedule is Mondays/Tuesdays. So, evenings those days after 7:00 pm would be best and not after 10:00 pm. The other days is catch as catch can.


==================================
Of Note: I've not taken the time to proof read this post. I hope there is not too many typos or misplaced wording./elonna]]> https://elonnascorner.com/showthread.php?tid=711 Thu, 06 Sep 2012 01:35:08 +0000 https://elonnascorner.com/showthread.php?tid=711
My daughter Abigail was diagnosed with myelodysplastic syndrome 4 and a half yrs ago; a type of bone marrow failure or pre leukemia.

She had her first bone marrow transplant on May 15, 2008 with her brother being her donor. Then relapsed 1 and a half yrs later. She underwent a second transplant also with her brother as her donor, again to relapse 3 months later. So they did an unrelated bone marrow transplant only 10 months later to relapse again.

So they put her on vidaza once a month to get it back under control for 6 months and she ended up relapsing with acute myeloid leukemia and then underwent 18 days of chemo followed by a stem cell boost from her previous donor, which gave her a disease called graft vs host disease which is supposed to be the donor cells attacking the leukemia cells. The donor cells recognize the leukemia cells as foreign and kill them. This did work for a couple of months than in June of this year tumors started popping up on her head.

They biopsied them and found leukemia, so yet another relapse. They sent us home with no more options.

Long story short we found out about Biosuperfood and supplements to strengthen immune system, and finally Protocel 50 came into the picture. She has only been on it for a week, but today her blasts are now excessive and her platelets are clumping for the past two weeks; not sure why, we know they are low.

So any input is appreciated. I just know I have to still have hope and let me tell you how hard that is when you watch your child go through this pain.


Abigail's Mom


=====================================\
Editing Reasons:
1. Changed title of thread somewhat.
2. Add in capitals and blank lines between paragraphs for better ease of reading./elonna
]]>
My daughter Abigail was diagnosed with myelodysplastic syndrome 4 and a half yrs ago; a type of bone marrow failure or pre leukemia.

She had her first bone marrow transplant on May 15, 2008 with her brother being her donor. Then relapsed 1 and a half yrs later. She underwent a second transplant also with her brother as her donor, again to relapse 3 months later. So they did an unrelated bone marrow transplant only 10 months later to relapse again.

So they put her on vidaza once a month to get it back under control for 6 months and she ended up relapsing with acute myeloid leukemia and then underwent 18 days of chemo followed by a stem cell boost from her previous donor, which gave her a disease called graft vs host disease which is supposed to be the donor cells attacking the leukemia cells. The donor cells recognize the leukemia cells as foreign and kill them. This did work for a couple of months than in June of this year tumors started popping up on her head.

They biopsied them and found leukemia, so yet another relapse. They sent us home with no more options.

Long story short we found out about Biosuperfood and supplements to strengthen immune system, and finally Protocel 50 came into the picture. She has only been on it for a week, but today her blasts are now excessive and her platelets are clumping for the past two weeks; not sure why, we know they are low.

So any input is appreciated. I just know I have to still have hope and let me tell you how hard that is when you watch your child go through this pain.


Abigail's Mom


=====================================\
Editing Reasons:
1. Changed title of thread somewhat.
2. Add in capitals and blank lines between paragraphs for better ease of reading./elonna
]]> https://elonnascorner.com/showthread.php?tid=549 Sun, 15 Jan 2012 12:52:05 +0000 https://elonnascorner.com/showthread.php?tid=549
So, if you want to have a private conversation with me about information you do not want included in The Corner, then you will need to give me a phone call rather than send me a private email.

Thank you for your understanding.]]>
So, if you want to have a private conversation with me about information you do not want included in The Corner, then you will need to give me a phone call rather than send me a private email.

Thank you for your understanding.]]> https://elonnascorner.com/showthread.php?tid=548 Sun, 15 Jan 2012 12:46:51 +0000 https://elonnascorner.com/showthread.php?tid=548
Due to some recent posts directed to "Administration of The Corner", I thought I needed to clarify to you all that I am the administration of The Corner. While Rob is also considered an administrator, he rarely does any posting or finalizing of registrations. Additionally, our nephew Brandon is also an administrator, however, this is solely for the purpose of updating The Corner forum program and/or making changes to it. He will never be involved in the day-to-day operations of The Corner.


To clarify, if you are writing to "Administration" you are going to get my private email address right now. There may come a time where we switch it to something different so it is separated out and kept from being batched with my regular emails, however, right now it is being directed into my private email address.

ALL registration applications are hand accepted by myself in order to avoid having spam addresses/content on The Corner. For example, today when I signed on, there was something like 25-30 spam registrations which I had to hand delete. This amount is higher than normal, but every time I go into activation area, there 2-3, often more. Further, while I can appreciate every new individual's desire to get onto The Corner immediately, it is impossible for me to activate registrations on a daily basis. Individuals are sent information when they fill out a registration that should tell them that it takes 24-72 hours for their application to be finalized.

Finally, if you need to send me an administration-type email, feel free to do so. I will do my best to address the forum issue(s) brought to my attention through such email. However, at the moment, please know that you will receive an automatically generated email stating that I am behind in my email replies and asking for individuals to join The Corner or call me personally. Your email is still being placed into my inbox and I will find it in there eventually. It probably would be a good idea to put wording in the subject line to the effect that it is about The Corner.

Thank you!]]>
Due to some recent posts directed to "Administration of The Corner", I thought I needed to clarify to you all that I am the administration of The Corner. While Rob is also considered an administrator, he rarely does any posting or finalizing of registrations. Additionally, our nephew Brandon is also an administrator, however, this is solely for the purpose of updating The Corner forum program and/or making changes to it. He will never be involved in the day-to-day operations of The Corner.


To clarify, if you are writing to "Administration" you are going to get my private email address right now. There may come a time where we switch it to something different so it is separated out and kept from being batched with my regular emails, however, right now it is being directed into my private email address.

ALL registration applications are hand accepted by myself in order to avoid having spam addresses/content on The Corner. For example, today when I signed on, there was something like 25-30 spam registrations which I had to hand delete. This amount is higher than normal, but every time I go into activation area, there 2-3, often more. Further, while I can appreciate every new individual's desire to get onto The Corner immediately, it is impossible for me to activate registrations on a daily basis. Individuals are sent information when they fill out a registration that should tell them that it takes 24-72 hours for their application to be finalized.

Finally, if you need to send me an administration-type email, feel free to do so. I will do my best to address the forum issue(s) brought to my attention through such email. However, at the moment, please know that you will receive an automatically generated email stating that I am behind in my email replies and asking for individuals to join The Corner or call me personally. Your email is still being placed into my inbox and I will find it in there eventually. It probably would be a good idea to put wording in the subject line to the effect that it is about The Corner.

Thank you!]]> https://elonnascorner.com/showthread.php?tid=531 Mon, 05 Dec 2011 20:20:43 +0000 https://elonnascorner.com/showthread.php?tid=531
Sorry for the inconvenience. Everything will be back to normal before the end of the week.

Thank you.]]>
Sorry for the inconvenience. Everything will be back to normal before the end of the week.

Thank you.]]> https://elonnascorner.com/showthread.php?tid=516 Tue, 08 Nov 2011 19:43:19 +0000 https://elonnascorner.com/showthread.php?tid=516
I have found myself becoming very overwhelmed with the number of phone calls, private emails and posts on The Corner along with trying to juggle everything in and around my home/private life. I do not want to get into a position where I just shut down and can go no further with supporting those on Protocel who "find" me.

Because of my commitment to all of you using Protocel, this has been a tough decision for me to make as I understand that when you need/want answers you need/want them now. However, it has reached the point where I need to have at least one day a week where I am not available for Protocel phone calls. As Sunday is God's day of rest, then I'm also going to call it my "Protocel Day of Rest". I am hoping that this day of rest recharges me physically, emotionally and mentally.


During the balance of the week, I will try to make myself available as much as possible for phone conversations. However, I am putting the following Ground Rules in place:

1. NO calls before 9:00 a.m. and NO calls after 10:00 p.m. (Unless an absolute emergency). Rob works day turn and goes to bed between 10:00-10:30 p.m. I really would like to stop his being awaken by phone calls. Please factor in time differences if you are calling from another country. I am located in Ohio, USA which follows Eastern Standard Time.

2. If the phone rings 5 times without an answer, please hang up and try again at a reasonably later time (please not 5 minutes later). If I have not answered by the 5th ring, it means that I am either:

• Not at home
  
• Unavailable because of family time
  
• Already on another phone call or
  
• Someone else in my family is on another phone call.
  

Thank you for your understanding in this matter.
]]>
I have found myself becoming very overwhelmed with the number of phone calls, private emails and posts on The Corner along with trying to juggle everything in and around my home/private life. I do not want to get into a position where I just shut down and can go no further with supporting those on Protocel who "find" me.

Because of my commitment to all of you using Protocel, this has been a tough decision for me to make as I understand that when you need/want answers you need/want them now. However, it has reached the point where I need to have at least one day a week where I am not available for Protocel phone calls. As Sunday is God's day of rest, then I'm also going to call it my "Protocel Day of Rest". I am hoping that this day of rest recharges me physically, emotionally and mentally.


During the balance of the week, I will try to make myself available as much as possible for phone conversations. However, I am putting the following Ground Rules in place:

1. NO calls before 9:00 a.m. and NO calls after 10:00 p.m. (Unless an absolute emergency). Rob works day turn and goes to bed between 10:00-10:30 p.m. I really would like to stop his being awaken by phone calls. Please factor in time differences if you are calling from another country. I am located in Ohio, USA which follows Eastern Standard Time.

2. If the phone rings 5 times without an answer, please hang up and try again at a reasonably later time (please not 5 minutes later). If I have not answered by the 5th ring, it means that I am either:

• Not at home
  
• Unavailable because of family time
  
• Already on another phone call or
  
• Someone else in my family is on another phone call.
  

Thank you for your understanding in this matter.
]]> https://elonnascorner.com/showthread.php?tid=421 Wed, 27 Jul 2011 18:32:38 +0000 https://elonnascorner.com/showthread.php?tid=421

Brandon will be doing this upgrade on Friday afternoon between the hours of 3:00 p.m. and 7:00 p.m. (Eastern Standard Time). Hopefully, it will not take the full 4 hours to get the new programming in place. During this time, we will unfortunately have to have the system closed down. However it will, baring any unforeseen issues, be back available after 7:00 p.m. Friday (if not sooner).

So, please make a mental note that The Corner will be CLOSED from 3:00 p.m. and 7:00 p.m. (Eastern Standard Time) on Friday, July 29th.]]>

Brandon will be doing this upgrade on Friday afternoon between the hours of 3:00 p.m. and 7:00 p.m. (Eastern Standard Time). Hopefully, it will not take the full 4 hours to get the new programming in place. During this time, we will unfortunately have to have the system closed down. However it will, baring any unforeseen issues, be back available after 7:00 p.m. Friday (if not sooner).

So, please make a mental note that The Corner will be CLOSED from 3:00 p.m. and 7:00 p.m. (Eastern Standard Time) on Friday, July 29th.]]> https://elonnascorner.com/showthread.php?tid=419 Wed, 27 Jul 2011 18:27:09 +0000 https://elonnascorner.com/showthread.php?tid=419
Unfortunately, somehow we got into somebody's computer system that has gone a-muck with registrations for admittance into The Corner. Please rest assured that these registrations are being banned from admittance into The Corner. As we hand approve every registration, we have been able to prevent someone from actually "hacking" us (at least so far). As state above, I have banned each of these "odd" registrations today. Unfortunately, though, you will see some odd names/words as being admitted as new members and on the birthday list. These names should be off these areas by tomorrow.

Additionally, rest assured that no one has automatic access to your private emails through The Corner's program. These emails are protected from view from everyone with the exception of Administrators/Moderators of The Corner.

I would appreciate it, though, if I would be notified immediately if there is ever an odd posting/thread. Thank you!]]>
Unfortunately, somehow we got into somebody's computer system that has gone a-muck with registrations for admittance into The Corner. Please rest assured that these registrations are being banned from admittance into The Corner. As we hand approve every registration, we have been able to prevent someone from actually "hacking" us (at least so far). As state above, I have banned each of these "odd" registrations today. Unfortunately, though, you will see some odd names/words as being admitted as new members and on the birthday list. These names should be off these areas by tomorrow.

Additionally, rest assured that no one has automatic access to your private emails through The Corner's program. These emails are protected from view from everyone with the exception of Administrators/Moderators of The Corner.

I would appreciate it, though, if I would be notified immediately if there is ever an odd posting/thread. Thank you!]]> https://elonnascorner.com/showthread.php?tid=414 Sun, 17 Jul 2011 00:53:33 +0000 https://elonnascorner.com/showthread.php?tid=414
I want you all to know/realize that when you call our home and you get my husband, Rob, that he is very capable of answer a great many of your questions if I am not home or unavailable for some other reason. After all, he was the one that researched it for us in the first place and decided that it was what I was supposed to take to be healed. While I know it would be the same as talking to me -- of course because I'm so special -- he is a great one to bounce some thought with.

Additionally, any caregivers out there, especially husbands/wives -- he is available to answer any questions you might have about how to best help your loved one, how to support them during the process and protect them from negativity of those who claim that "I wouldn't do that if I was in your shoes".....]]>
I want you all to know/realize that when you call our home and you get my husband, Rob, that he is very capable of answer a great many of your questions if I am not home or unavailable for some other reason. After all, he was the one that researched it for us in the first place and decided that it was what I was supposed to take to be healed. While I know it would be the same as talking to me -- of course because I'm so special -- he is a great one to bounce some thought with.

Additionally, any caregivers out there, especially husbands/wives -- he is available to answer any questions you might have about how to best help your loved one, how to support them during the process and protect them from negativity of those who claim that "I wouldn't do that if I was in your shoes".....]]> https://elonnascorner.com/showthread.php?tid=346 Tue, 05 Apr 2011 17:15:36 +0000 https://elonnascorner.com/showthread.php?tid=346 Our son Danny was diagnosed with pontine glioma last September (turn in his eye brought us from an ophthalmologist to a CT to an MRI scan in a matter of days, with a big shock when we were told that this was an inoperable tumor because of the location and outside of radiotherapy there is nothing that can be done). after initial panic, a round of radiotherapy and an MRI scan that showed a significant reduction in the size of the tumor, we are now on the protocel journey...

Danny has been taking protocel for about 5 weeks now. We have just moved up to the 1/4 spoon 5 times a week (protocel 23). Now, here's my question:
from reading "outsmart your cancer" it appears that 23 is the right formulation for brain tumors, although depending on how I read things we may need to move him to protocel 50. Could anyone out there please advise on which formula is best for Danny, I'll need to order the next batch this week and I don’t want to get the wrong one, mainly because I don't want to delay the transition, if I need to make one.

would really appreciate a response to this one ASAP.
Thanks,
John]]> Our son Danny was diagnosed with pontine glioma last September (turn in his eye brought us from an ophthalmologist to a CT to an MRI scan in a matter of days, with a big shock when we were told that this was an inoperable tumor because of the location and outside of radiotherapy there is nothing that can be done). after initial panic, a round of radiotherapy and an MRI scan that showed a significant reduction in the size of the tumor, we are now on the protocel journey...

Danny has been taking protocel for about 5 weeks now. We have just moved up to the 1/4 spoon 5 times a week (protocel 23). Now, here's my question:
from reading "outsmart your cancer" it appears that 23 is the right formulation for brain tumors, although depending on how I read things we may need to move him to protocel 50. Could anyone out there please advise on which formula is best for Danny, I'll need to order the next batch this week and I don’t want to get the wrong one, mainly because I don't want to delay the transition, if I need to make one.

would really appreciate a response to this one ASAP.
Thanks,
John]]> https://elonnascorner.com/showthread.php?tid=323 Mon, 14 Mar 2011 05:52:39 +0000 https://elonnascorner.com/showthread.php?tid=323
Abigail had not been feeling well for a couple of weeks (fever, RSV-sounding cough, lethargy). On Saturday, January 15, Annabeth noticed a lump on Abigail's lower neck near her shoulder. They took her to the urgent care and were told to take her to a children's hospital for blood work to determine what it might be. After drawing blood (which Abigail HATED), x-rays of chest and abdomen, another IV, and a CT scan, the doctors believed it to be a pediatric cancer called Neuroblastoma. The tumor starts on her left kidney/adrenal gland and works its way up through her torso, behind her heart, and surrounds her aorta artery.

A surgery was set for Monday, January 17 for the doctors to get a biopsy of the tumor as well as a biopsy of Abigail's bone marrow.

Saturday night they put Abigail in PICU (pediatric ICU) and decided to drain the fluid around her lung that night instead of waiting for Monday. The surgeon inserted a tube (big, long thing) in between her ribs and lung muscle. The lung was collapsed, and the area was full of fluid. They drained an insane amount of fluid.

Sunday she remained in that state with an IV, blood pressure cuff, oxygen monitor on her toe, tube going into her chest, and pediatric cables taped to 3 places in her back. She received morphine every 2 hours because adult patients report that chest tubes are extremely painful to have in.

Sunday night was not a good night for Abigail. Her breathing became extremely labored, and she did not look good.

On Monday the doctors were able to move her surgery time up 1.5 hours to try to help her. The surgery went well, and the Goss family was so very grateful!

She was in PICU for 3 weeks, most of that time fully sedated and intubated to allow her lungs time to heal. The tumor had complicated her organs and was preventing lymph from draining normally; she had extreme edema. She received one round of chemotherapy while sedated.

We finally got discharged, only to return the next day because she was vomiting uncontrollably--diagnosed with rotavirus ---the common childhood 'stomach bug'!!!

Finally got over all that; we started her on Protocel. Decided she needed one more round of chemo to keep the tumor in control and to give Protocel time to work. I hate chemotherapy, but we felt inspired and at peace with the decision. She made it through remarkably well.

Her oncologist says she has had a 92% decrease in tumor size!!! And that was only from round 1 of chemo. So we feel she has a really good path to start Protocel on.

Neuroblastoma is a childhood cancer that is very rare, and usually the child is born with it and it takes some time to detect.


======================
Editing Reason: Changed name of subject line just slightly.]]>
Abigail had not been feeling well for a couple of weeks (fever, RSV-sounding cough, lethargy). On Saturday, January 15, Annabeth noticed a lump on Abigail's lower neck near her shoulder. They took her to the urgent care and were told to take her to a children's hospital for blood work to determine what it might be. After drawing blood (which Abigail HATED), x-rays of chest and abdomen, another IV, and a CT scan, the doctors believed it to be a pediatric cancer called Neuroblastoma. The tumor starts on her left kidney/adrenal gland and works its way up through her torso, behind her heart, and surrounds her aorta artery.

A surgery was set for Monday, January 17 for the doctors to get a biopsy of the tumor as well as a biopsy of Abigail's bone marrow.

Saturday night they put Abigail in PICU (pediatric ICU) and decided to drain the fluid around her lung that night instead of waiting for Monday. The surgeon inserted a tube (big, long thing) in between her ribs and lung muscle. The lung was collapsed, and the area was full of fluid. They drained an insane amount of fluid.

Sunday she remained in that state with an IV, blood pressure cuff, oxygen monitor on her toe, tube going into her chest, and pediatric cables taped to 3 places in her back. She received morphine every 2 hours because adult patients report that chest tubes are extremely painful to have in.

Sunday night was not a good night for Abigail. Her breathing became extremely labored, and she did not look good.

On Monday the doctors were able to move her surgery time up 1.5 hours to try to help her. The surgery went well, and the Goss family was so very grateful!

She was in PICU for 3 weeks, most of that time fully sedated and intubated to allow her lungs time to heal. The tumor had complicated her organs and was preventing lymph from draining normally; she had extreme edema. She received one round of chemotherapy while sedated.

We finally got discharged, only to return the next day because she was vomiting uncontrollably--diagnosed with rotavirus ---the common childhood 'stomach bug'!!!

Finally got over all that; we started her on Protocel. Decided she needed one more round of chemo to keep the tumor in control and to give Protocel time to work. I hate chemotherapy, but we felt inspired and at peace with the decision. She made it through remarkably well.

Her oncologist says she has had a 92% decrease in tumor size!!! And that was only from round 1 of chemo. So we feel she has a really good path to start Protocel on.

Neuroblastoma is a childhood cancer that is very rare, and usually the child is born with it and it takes some time to detect.


======================
Editing Reason: Changed name of subject line just slightly.]]> https://elonnascorner.com/showthread.php?tid=285 Sun, 26 Dec 2010 18:13:14 +0000 https://elonnascorner.com/showthread.php?tid=285
We are going to start Protocel. We have already done a Navarro Urine test which according to this shows a 53 and shows that the chemo helped us at least get down to a manageable level. He is having very hard time recovering for this, we can see it everyday. We feel God is leading us to NOT do the BMT and are not sure he would be able to tolerate one more dose of chemo. We are getting stronger and stronger in our resolution to avoid further chemo. Researching and prayer have helped immensely.

Looking to chat/ get feedback/encouragement from other parents on similar road.

Thanks
Tonya


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Editing Reason: Changed Title to add name as we are including names in "Tell Us Your Story Titles" due to the fact that there will eventually be many similar such cases on The Corner. Additionally, put in some paragraph lines just so it was easier to read post./elonna]]>
We are going to start Protocel. We have already done a Navarro Urine test which according to this shows a 53 and shows that the chemo helped us at least get down to a manageable level. He is having very hard time recovering for this, we can see it everyday. We feel God is leading us to NOT do the BMT and are not sure he would be able to tolerate one more dose of chemo. We are getting stronger and stronger in our resolution to avoid further chemo. Researching and prayer have helped immensely.

Looking to chat/ get feedback/encouragement from other parents on similar road.

Thanks
Tonya


===============================
Editing Reason: Changed Title to add name as we are including names in "Tell Us Your Story Titles" due to the fact that there will eventually be many similar such cases on The Corner. Additionally, put in some paragraph lines just so it was easier to read post./elonna]]> https://elonnascorner.com/showthread.php?tid=284 Sun, 26 Dec 2010 17:18:52 +0000 https://elonnascorner.com/showthread.php?tid=284
Thanks
Tonya]]>
Thanks
Tonya]]>